To help caregivers better understand and meet the healthcare needs of people with cognitive impairment or intellectual disability, the University of Notre Dame Australia (UNDA) has published a new health literacy guide. 

Now freely available online, the 180-page guide was developed by Dr Rachel Skoss from UNDA’s Institute for Health Research, supported by a grant from WA Department of Health. 

Written after widespread consultation with stakeholders, families and healthcare providers, the guide covers healthy lifestyles and preventative care, management of specific health conditions, navigating the health system, and engaging with health professionals. It also advises how families and carers can help people with an intellectual disability understand what is happening to them and make informed decisions about their treatment. 

The guide may also be useful for medical practitioners, helping them to better understand the unique needs of their patients and the importance of working with them and their caregivers for the best outcomes. There is also good advice for disability organisations who support people living in group homes. 

View the health literacy guide: Health Care, For People Who Need Extra Support [PDF]